Please read our policies that may be of interest to you.
Concerns and Complaints
If you have reason to complain.
Confidentiality and Data Protection
We have strict standards and high expectations.
Disagreements Over Management and Treatment
If parents / carers of a child with SMA or an adult with SMA disagrees with their medical team re: management and treatment options.
We comply with the Equality Act 2010.
Information Production Policy
Our aims and commitment to accuracy.
Our Volunteering & Network Guidelines
These are helpful to read if you're volunteering for SMA UK and / or perhaps having one-on-one contact sharing your tips and ideas with someone.
Personal Funding Campaigns Policy
How we respond to these campaigns.
Our commitment to zero tolerance of abuse and neglect.
Everyone who comes into contact with children and families has a role to play.
Treatment of Animals Policy