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Page last updated: 29th January 2024

 

Risdiplam is funded by the NHs in England via a Managed Access Agreement (MAA). This was first agreed in December 2021 and, following review, has since been updated. This MAA is currently being reviewed by NICE. Access to risdiplam will continue during this time. You can read more about the MAA and this review on our Advocacy for Access to Nuinersen and Risdiplam page >

 

Who may access Risdiplam Treatment? >

 

Where are the Centres offering Risdiplam treatment? >

 

Clinical assessment scales and measures – what is used, when? >

 

Patient Reported Outcome Measures (PROMS) >