Recently Diagnosed with SMA
![](https://smauk.org.uk/wp-content/uploads/2023/06/diagnosis-scaled.jpg)
Recently Diagnosed with SMA
If you or a family member has been recently diagnosed with SMA, this often comes as a shock and can be difficult for everyone involved.
At SMA UK, we work with leading clinicians from the UK and Europe using their expert knowledge to help us create informative guides and provide the most up to date information in various formats that will help navigate a recent diagnosis of SMA.
SMA UK’s Support & Outreach Team is here to support you and your family at this time so please do not hesitate to get in touch with them.
If you want to know more about the latest updates on treatments and research, please see here.
If your baby has been part of the Oxford-Thames Valley-Wessex SMA newborn screening study and been diagnosed with SMA, please talk to your baby’s clinical team about the diagnosis and what this means for you and your child. You can also discuss with them which pages on our website may still be useful for you.
![Hearing your baby’s diagnosis Website card Image shows parent / carer's hand holding a baby's hand.](https://smauk.org.uk/wp-content/uploads/2024/02/Hearing-your-babys-diagnosis-Website-card.png)
![Hearing your child’s diagnosis Website card Image shows a doctor holding a parent / carers' hands in support.](https://smauk.org.uk/wp-content/uploads/2024/02/Hearing-your-childs-diagnosis-Website-card.png)
![Sidney Sidney](https://smauk.org.uk/wp-content/uploads/2023/06/JKP1078-1024x681.jpg)
![Lily Girl outside in powerchair](https://smauk.org.uk/wp-content/uploads/2023/03/Lily.jpg)
![Bobby Allen at school Bobby Allen at school](https://smauk.org.uk/wp-content/uploads/2023/06/Bobby-Allen-at-school--1024x712.jpg)
![Gary, SMA Type 4, website card Image shows an adult man who has SMA, standing with his partner outside his house.](https://smauk.org.uk/wp-content/uploads/2023/03/Gary-SMA-Type-4-website-card.png)
![Henry Roberts SMA Type 2 with toys Image shows a young child with SMA Type 2 in a highchair with a tray, playing with toys.](https://smauk.org.uk/wp-content/uploads/2023/06/Henry-Roberts-SMA-Type-2-with-toys.png)
![Child with SMA Website card Child with SMA Website card](https://smauk.org.uk/wp-content/uploads/2023/08/Child-with-SMA-Website-card.png)