Professional Training and Upskilling

Although we don’t provide this ourselves, we have a number of resources listed below that you may find helpful.

If you have any questions, you can also contact our experienced Support and Outreach Team – find out more here.

Conversations with Health Professionals

These YouTube videos have been recorded with various health professionals who have expertise in SMA and related conditions – they cover a wide variety of topics, from diet to using cough assist.

Treatment Updates from Health Professionals

In these YouTube videos, our expert panel of clinicians give regular updates on access to treatment.

Muscular Dystrophy UK

Our partner charity MDUK has a Health Professionals Network to support professionals caring for someone living with a muscle-wasting condition.

SMA Reach UK – Paediatric

A national clinical and research network led by health professionals – has a number of useful resources.

SMA Reach UK – Adults

A data collection study aiming to gain a better understanding of the impact of standards of care and new treatments on the natural history of SMA.

Information about SMA

We have a number of information sheets on our website – see the ‘Our Information Sheets and Guides’ tab and order hard copies.