Memories of Children who had SMARD1

Our thanks to the families who have shared their very personal thoughts and photos, here, of loved ones who had SMARD1.

Image shows a small boy who had SMARD1.

Charlie and Thomas

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Image of a little boy who had SMARD 1.

Fergus

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Image shows a little boy with a tracheostomy who has SMARD1.

Louie

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