England – Access to Nusinersen
England – Access to Nusinersen
Page last updated: 17th December 2024
Nusinersen is funded by the NHs in England via a Managed Access Agreement (MAA). This was first agreed in July 2019 and, following review, has since been updated. This MAA is currently being reviewed by NICE. Access to nusinersen will continue during this time. You can read more about the MAA and this review on our Advocacy for Access to Nuinersen and Risdiplam page >
Who may access Nusinersen Treatment? >
Where are the Centres offering Nusinersen treatment? >
Access for children – FAQs >
Access for adults – FAQs >
Clinical Assessments scales and measures – what is used, when? >
Patient Reported Outcome Measures (PROMS) >