This website google translation is automatic. Our information refers to health and other services in the UK. Before changing any care or treatment, please talk to your doctor about what you have read here. We hope you find the translated pages useful.
Adults – Reflections & Experiences
Adults – Reflections & Experiences
Community Voices
Anna’s Story
After fleeing the war in Ukraine, Anna, who has SMA Type 2, was in desperate need of a powerchair here in the UK. Read her story and find out how our Support & Outreach Team was able to help.
Read more>
Disability Trolling: How To Deal With Negative Comments Online
Ross has written a recent blog about some of the negative comments he’s been receiving online, and gives his top tips for how to deal with this.
Read more>
Steven – My Experience with SMA
Steven shares his experiences, from growing up and school, to his career and living independently.
Read more>
Hayleigh’s story
As part of SMA Awareness Month 2022, Hayleigh shared her story about a particularly difficult time she and her family went through, and the importance of the specialist healthcare they experienced, over 20 years ago.
Read more>
Luis’ Story
Luis shared his thoughts for SMA Awareness Month in 2022.
Read more>
Life Updates from Ross
Ross shared some updates on his blog, including how he’s been pushing himself out of his comfort zone.
