Finding Your Way: A Parent’s Guide to Rare Disease
Finding Your Way: A Parent’s Guide to Rare Disease
Are you a parent or carer of a child with a rare genetic condition?
Join the NHS Genomic Medicine Service for an online launch of Finding Your Way: A Parent’s Guide to Rare Disease.
Date: Wednesday 16 September, 12–1pm.
Location: Online (teams) Click here to register
Written by parents, for parents, the guide brings together practical support and trusted resources for families navigating a rare genetic condition.