News & updates
News & updates
Read the SMA Care Annual report for 2026
Read the latest news and updates about the SMA Care UK project:
29th Sept to 3rd Oct 2026: What we learned at WMS 2026 in Hiroshima – and what it means for SMA care
14th September 2026: Barriers to exercise in SMA: Preliminary research findings. Pete Waldock, one of the leads of our Exercise Working Group, has shared preliminary findings from a survey exploring the barriers to exercise experienced by people living with SMA. These findings will help inform the development of practical, evidence-based exercise guidelines that reflect the needs and experiences of the SMA community.
29th April 2026: More than 70 clinicians, researchers, allied health professionals, patient representatives and charity partners came together in Newcastle for the first SMA Care UK Annual meeting
17th March 2026: SMA Care UK presented its work at the SMA Europe Congress 2026 in Budapest, contributing to international discussions on evolving standards of care for SMA and showcasing a coordinated, multidisciplinary approach to improving care across the lifespan.
19th June 2025: SMA Care UK – one year on. This report marks the end of the first year of the SMA Care UK project. Find out about progress made so far and how people with SMA are helping shape new guidelines across the UK.
14th May 2025: Bringing SMA Care UK into focus at the annual conference of British Neurologists.