Regional Neuromuscular Centres (RNMCs)
Regional Neuromuscular Centres (RNMCs)
Page last updated: November 2023
This page lists the Regional Neuromuscular Centres (RNMCs) for adults and children across the UK. Some offer specialist care as an RNMC, but don’t offer treatment. They will, however, be linked with a treatment centre.
If you are not in touch with an RNMC, you should either:
- contact the centre where you received care previously or
- contact your nearest centre or
- ask your GP to make a referral to your nearest RNMC.
Some people who were diagnosed a long time ago may not have had a confirmed diagnosis of 5q SMA via an SMN1 gene deletion test. They should discuss genetic testing with the clinical team.
Nusinersen | Risdiplam | Zolgensma Infusion Centres (referral must be from an RNMC) | |
---|---|---|---|
England | |||
Alder Hey Children’s NHS Foundation Trust | Yes | Yes | |
Cambridge University Hospitals NHS Foundation Trust | Yes | Yes | |
Great Ormond Street Hospital for Children NHS Foundation Trust | Yes | Yes | Yes |
Guy’s & St Thomas’ NHS Foundation Trust (Evelina) | Yes | Yes | Yes |
Lancashire Teaching Hospitals NHS Foundation Trust | |||
Leeds Teaching Hospitals NHS Trust | Yes | Yes | |
Manchester University NHS Foundation Trust | Yes | Yes | Yes |
Nottingham University Hospitals NHS Trust | Yes | Yes | |
Oxford University Hospitals NHS Foundation Trust | Yes | Yes | |
Sheffield Children’s NHS Foundation Trust | Yes | Yes | Yes |
The Newcastle upon Tyne Hospitals NHS Foundation Trust | Yes | Yes | |
The Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust | Yes | ||
University Hospital Southampton NHS Foundation Trust | Yes | Yes | |
University Hospitals Birmingham NHS Foundation Trust | |||
University Hospitals Bristol & Weston NHS Foundation Trust | Yes | Yes | Yes |
University Hospitals of Leicester NHS Trust | |||
University Hospitals of North Midlands NHS Trust | Yes | ||
Scotland | Nusinersen | Risdiplam | Zolgensma |
Royal Aberdeen Children’s Hospital | Yes | Yes | |
Nine Wells Hospital – Dundee | Yes | Yes | |
Royal Hospital for Sick Children Edinburgh | Yes | Yes | |
Royal Hospital for Children Glasgow | Yes | Yes | Yes |
Inverness (not an RNMC*) | Yes | ||
*A community paediatrician sees children. A Neuromuscular consultant from Dundee visits twice a year to deliver specialist consultations. | |||
Wales | Nusinersen | Risdiplam | Zolgensma |
Bristol | Bristol | Bristol | |
Alder Hey | Manchester | ||
Northern Ireland | Nusinersen | Risdiplam | Zolgensma |
Belfast Children’s Hospital | Yes | Yes | Yes |
Nusinersen | Risdiplam | |
---|---|---|
England | ||
Bristol North NHS Trust | Yes | Yes |
Cambridge University Hospitals NHS Foundation Trust | Yes | |
King’s College London NHS Foundation Trust | Yes | Yes |
Leeds Teaching Hospitals NHS Trust | Yes | |
Nottingham University Hospitals NHS Trust | Yes | Yes |
Oxford University Hospitals NHS Foundation Trust | Yes | Yes |
Salford Royal NHS Foundation Trust | Yes | Yes |
Sheffield Teaching Hospitals NHS Foundation Trust | Yes | Yes |
St George’s University Hospitals, London NHS Foundation Trust | Yes | Yes |
The Newcastle upon Tyne Hospitals NHS Foundation Trust | Yes | Yes |
The Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust | Yes | |
The Walton Centre NHS Foundation Trust | Yes | |
University College London Hospitals NHS Foundation Trust | Yes | Yes |
University Hospitals Birmingham NHS Foundation Trust | Yes | Yes |
University Hospital Southampton NHS Foundation Trust | Yes | Yes |
Scotland | Nusinersen | Risdiplam |
Aberdeen | Yes | |
Dundee | Yes | |
Edinburgh | Yes | |
Glasgow | Yes | |
Inverness (not an RNMC)* | Yes | |
*A rehabilitation consultant sees adults. A Neuromuscular consultant from Dundee visits twice a year to deliver specialist consultations. | ||
Wales | Nusinersen | Risdiplam |
Cardiff | Yes | |
Swansea | Yes | |
Bristol | ||
Salford | ||
Northern Ireland | Nusinersen | Risdiplam |
Belfast | Yes | Yes |