Gordon brings more than 20 years of experience working in rare and orphan diseases, with a strong track record in charity leadership, governance, and advocacy. He has chaired the Rare Disease Nurse Network, served as a trustee for the MPS Society, and has supported a wide range of patient organisations with strategic development and advocacy. 

Alongside his extensive charity leadership experience, Gordon brings over 25 years in the pharmaceutical industry, most of it focused on rare diseases both in the UK and globally. 

Gordon joined SMA UK as Chair of the Board of Trustees in November 2025, and we are delighted to welcome him to the role as he leads the charity into its next chapter. 

Gordon say’s,  

“I’m delighted to join SMA UK as Chair of the Board and very much look forward to working with the incredible team, collaborating with our community, and partners to continue our vital work.”