Spinal Muscular Atrophy (SMA) is a rare genetic condition that affects muscle strength and movement, breathing and swallowing and early diagnosis can make a life-changing difference. Yet for many families the signs can be missed or recognised too late. That is why SMA UK is launching a new awareness campaign, SpotSMA (Spot the Signs, Measure Milestones, Action Treatment). 

Through SpotSMA, we aim to equip healthcare visitors and community practitioners with the knowledge and confidence to recognise early signs of SMA, such as low muscle tone or delayed motor milestones, and take timely action. By bringing awareness directly to healthcare professionals, this campaign helps bridge gaps in access to diagnosis, supports culturally sensitive communication, and ensures that more children, regardless of background, have the opportunity for earlier diagnosis, faster access to treatment, and improved outcomes. 

This campaign is funded by Novartis, Biogen and Roche. They had no involvement o influence over the content and development of the campaign or materials.