Latest News: Support

Autumn/Winter Events Feedback

24 October 2018 / Posted in: Support

If you have attended one of our Autumn/Winter Social Events so far we hope you had an enjoyable day. We would like your feedback and have put together a short survey to gather your views.

Read full story

Consultation About Spinal Muscular Atrophy UK's Priorities

09 October 2018 / Posted in: Information, Treatments & Research, Support

We are now starting to work out priorities for the new organisation, including how and when the funds we hope to raise should be spent. We are very keen to hear the views of as many people in the SMA Community as possible. The survey closes on 11th November.

Read full story

Leonard Cheshire's Change 100 Programme Now Open For Applications

08 October 2018 / Posted in: Information, Support

The Change 100 scheme was launched in 2014 to enable young disabled people to obtain useful work experience and mentoring. Applications are now open until 16th January 2019.

Read full story

Easier Assistance App for Disabled Rail Passengers

28 September 2018 / Posted in: Information, Support

A new smartphone app, currently being trialled by four train companies, will be rolled out across Britain in Autumn next year to help with passenger assistance, with the aim of making it easier for customers to book help at stations and get a more consistent and reliable service.

Read full story

Baby Loss Awareness Week

26 September 2018 / Posted in: Information, Support

Taking place between 9th and 15th October, this awareness week is a collaboration between 60+ charities across the UK to raise awareness about the issues affecting those who have experienced pregnancy loss or death of a baby in the UK.

Read full story

School Transport is Number 1 Issue on Contact's Helpline

21 September 2018 / Posted in: Information, Support

The charity Contact for Families of Disabled Children say that they have been inundated with calls about issues surrounding school transport. There are a number of support resources available about this on their website, along with an upcoming live Facebook Q&A, and Midlands workshops.

Read full story

Money Matters Guide

31 August 2018 / Posted in: Information, Support

It's back to school time which can mean higher than normal costs, with new uniforms, stationery, bags etc. You might want to check out Contact's 'Money Matters' guide which includes details on the financial help you're entitled to if your child's at school.

Read full story

SMA Support UK & The SMA Trust to Merge as Spinal Muscular Atrophy UK!

06 August 2018 / Posted in: Support

Following the phenomenally positive response to our recent merger consultation, we are delighted to announce that the Boards of both organisations have agreed to merge at the end of September 2018.

Read full story

Autumn / Winter Events - Save The Date!

25 July 2018 / Posted in: Information, Support

We are, once again, hosting events around the country so that children, young people, adults and families can meet up. Dates this year are earlier to try to avoid winter illness, bad weather and overstretching family diaries in the run up to Christmas.

Read full story

Petition Launched to Fund Lifeline Care for Seriously Ill Children

24 July 2018 / Posted in: Support

Together for Short Lives has launched an online petition calling on the Prime Minister to use some of the recent 3.4% NHS funding boost to fund lifeline care for seriously ill children.

Read full story