Latest News: Support

The DSA Claim It! Campaign

18 July 2018 / Posted in: Support

This Campaign, from Disability Rights UK, offers advice and information about Disabled Students' Allowances (DSAs) and other university-led adjustments.

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Speaking Up For Provision Of Cough Assist Machines

26 June 2018 / Posted in: Support

A group of three West Midlands CCGs are reviewing their policy on cough assists, which could result in patients being denied this vital piece of equipment. We have added our voice to protest against this.

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Carers: Your Right To Request Flexible Working Hours

14 June 2018 / Posted in: Support

Carers UK have information on their website and a free, downloadable guide on your right to request flexible working.

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Petition to End the Care Crisis

12 June 2018 / Posted in: Support

After surveying nearly 4,000 adults of all ages who need care or who look after someone with care needs, the Care and Support Alliance (CSA) discovered that people are unable to get the basic care and support they need. Add your voice to their campaign and sign the petition.

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Helpful Podcasts

31 May 2018 / Posted in: Support

Contact have a number of helpful podcasts available to listen to on their website. Their latest is by one of their helpline advisers who explains what happens when a young person who is on Disability Living Allowance turns 16.

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SMA Matters Spring 2018

31 May 2018 / Posted in: Support

Follow the link to download the Spring 2018 edition of our SMA Matters (previously known as 'Inspirations') newsletter.

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Extending Rights to Personal Health Budgets

04 May 2018 / Posted in: Support

This survey seeks views on extending specific groups rights to an integrated personal budget (e.g.people who access wheelchair services whose posture and mobility needs impact their wider health & social care needs) and on the potential to incorporate additional funding streams into that budget.

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Access to Psychological Support - Your Views

02 May 2018 / Posted in: Support

Thank you to those of you who completed our surveys. We have forwarded the results and your comments to MDUK so that they can be incorporated into the report they are preparing for the APPG 6-month inquiry. To see the results of the surveys, or if you are seeking emotional support, please click here.

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Survey about Family Finances

24 April 2018 / Posted in: Support

Contact is calling on family members who care for children and young people with additional needs or disabilities to take part in important research about family finances.

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Do you have SMA? Are you thinking about having children now or in the future?

12 April 2018 / Posted in: Support

We have a number of resources available here on our website that you may find helpful or of interest, including personal stories that mums with SMA have shared.

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