Latest News: Support

ThinkBIGGER! - ITV Production Training Scheme

11 February 2021 / Posted in: Information, Support

Want to get into TV? ThinkBIGGER! has joined forces with ITV to launch their brand-new Production Training Scheme which aims to attract candidates from backgrounds that are currently underrepresented in the industry, including those from lower-socio economic backgrounds, those from Black, Asian and minority ethnic communities, and disabled people. Applications are open until 19th Feb.

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MDUK - Your Experience of the COVID-19 Pandemic

27 January 2021 / Posted in: Information, Support

Muscular Dystrophy UK are running a survey with the opportunity for you to share your experiences of coping with the pandemic and accessing services. They are keen to learn about any positive changes you have experienced in the way services have been delivered, as well as exploring the challenges you have faced.

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Work and Pensions Committee Inquiry into the Disability Employment Gap

27 January 2021 / Posted in: Information, Support

Thank you to the young adult network members who worked with us in December to submit a response to the questions raised. We also drew on the experiences others have relayed to our Support Services Team.

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National Strategy for Disabled People: Survey Launched

22 January 2021 / Posted in: Information, Support

The public survey is a chance for disabled people and their carers, friends and family, to share views and life experiences. The responses will help the government understand the barriers faced by disabled people and what it can do to improve disabled people's lives.

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NCB - Living Assessments Recruitment

15 January 2021 / Posted in: Information, Support

Are you a young person or parent with experience of having had a social care assessment? Living Assessments is a five-year project from the National Children's Bureau looking at the decision-making process for providing social care support to children and families, the impact of that support, and the lived experiences of assessments.

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Adept Field Solutions - Research Project

15 January 2021 / Posted in: Information, Support

Market researchers Adept Field Solutions are running a project, sponsored by a pharmaceutical company, seeking the views of people in the UK who are living with SMA and their families / partners / caregivers. Those who take part will receive £50.

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AMRC - Write to Boris Johnson to Save Charity-Funded Medical Research

11 January 2021 / Posted in: Information, Treatments & Research, Support

AMRC has reported on the devastating impact of covid on medical research charities who have had to make drastic cuts to their research funding. You can sign AMRC's letter calling for the Government to provide vital funding support to protect medical research and patients.

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DBC Survey: Your Views on Increasing Legacy Benefits by £20 a Week

08 January 2021 / Posted in: Information, Support

In March, in response to Covid-19, the Government increased the standard rate of Universal Credit and working tax credits by £20 a week. The Government, however, has not increased ‘legacy benefits’ in the same way. The DBC is calling for urgent action to make sure the 2 million disabled people and others on legacy benefits are not left behind. Share your views on this in their survey, by 18th January.

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Survey from the British Paediatric Neurology Association

18 December 2020 / Posted in: Information, Support

The BPNA are asking us to share their survey so they can gain your valued views about the input of hospital doctors, specifically paediatric neurologists, who may be involved in providing medical care for your child. The survey takes around 3-5 minutes to complete.

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Star in the Rare Disease Day 2021 Video

17 December 2020 / Posted in: Information, Support

As part of the upcoming Rare Disease Day 2021, Rare Disease UK are making a video to capture the experiences of the rare community, so are asking you to send them your footage – moments of joy, tears, frustration and everything in between. Closing date for video submission is 13th January 2021.

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