Latest News: Support

New Resource From Together For Short Lives

03 April 2018 / Posted in: Support

‘A checklist to a good transition’ joins their list of resources aimed at improving the experiences of young people moving from familiar children’s services into adult services.

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Do You Know Someone Who Deserves or Needs a Brand New Garden/Home Makeover? Do You Know Someone Who Deserves or Needs a Brand New Garden/Home Makeover?

22 November 2017 / Posted in: Support

ITV1's garden makeover show 'Love Your Garden with Alan Titchmarsh' is back (along with sister show, 'Love Your Home and Garden'). Apply or nominate someone who could benefit.

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Inspirations Autumn 2017 Inspirations Autumn 2017

09 November 2017 / Posted in: Support

Follow the link to download the Autumn 2017 edition of our 'Inspirations' newsletter, and the Christmas insert.

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Join EHRC's Disability Advisory Committee Join EHRC's Disability Advisory Committee

09 November 2017 / Posted in: Support

They are looking for high-performing individuals with disability expertise to join their new Disability Advisory Committee. Applications close 24th November.

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UK SMA Awareness Day 2017 - The Results! UK SMA Awareness Day 2017 - The Results!

02 October 2017 / Posted in: Support

Thank you to everyone who helped to make this Awareness Day campaign our biggest yet! Read the facts and figures here.

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Our Survey: So What Did You Tell Us? Our Survey: So What Did You Tell Us?

29 June 2017 / Posted in: Support

Thank you to those of you who completed our survey and told us what you think of our current services and gave us your ideas about our future direction. Here are the results...

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Summer Social Events 2017 Summer Social Events 2017

28 June 2017 / Posted in: Support

You're warmly invited to attend one of our summer social events. Please book early to secure your place and we look forward to seeing you there.

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Inspirations Spring 2017 Inspirations Spring 2017

26 June 2017 / Posted in: Support

Follow the link to download the latest copy of our Inspirations newsletter for Spring 2017.

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SMA Voices: Maddison SMA Voices: Maddison

03 May 2017 / Posted in: Support

Lidia, Maddison's mum, shares their family's thoughts and experiences in this SMA Voices piece about Maddison who was diagnosed with SMARD at 9 months and is now 8 years old.

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SMA Voices: Ross SMA Voices: Ross

12 April 2017 / Posted in: Support

Ross Lannon is 23 years old and has Spinal Muscular Atrophy Type 2. He has written an SMA Voices for our website that describes his recent trip to the Calvert Trust in Exmoor with a group of friends.

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