Republic of Ireland adds SMA to the newborn screening blood spot test! InformationNewsTreatments & Research Monday, 27 November 2023
Progress update on UK NSC work to assess newborn screening for SMA AdvocacyInformationNewsTreatments & Research Friday, 20 October 2023
Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing AdvocacyInformation Thursday, 12 October 2023
Disabled Children’s Partnership – New Campaign: “This is Social Care” InformationNews Wednesday, 13 September 2023
New Survey: Patient feedback around development of a Neuromuscular Complex Care Centre (NMCCC) in the North East InformationNewsSurveys Tuesday, 29 August 2023
Not long left to submit your applications to join the Adult Advocacy Working Group… AdvocacyInformation Tuesday, 29 August 2023
Research into the views of the SMA Community towards newborn screening for SMA in the UK AdvocacyInformationNews Tuesday, 25 July 2023