Community Voices - Podcasts, Videos & Stories
Scroll down for a whole range of experiences and thoughts - our thanks to all our contributors. To add your experience - in writing, a video, a photo or a podcast - find out more.
Out and About and Leisure Time
Sport, driving, travel to name just a few.
Adult Reflections
Living independently, working, travelling, looking back on life to date.
Teenage Reflections
Work experience, school, hobbies and life in general.
Family Reflections
Equipment, education and spinal surgery are some of the topics discussed.
Having SMA & Becoming a Parent
The journeys that have led to this new chapter of life.
Animal Companions
From assistance dogs to pampered pets and furry friends.
Speaking Up For SMA
In the media, at an event or Parliament – what people have been doing.
.jpg)
Parents' experiences of Diagnosis and Care for their infants who had SMA Type 1
Since 2011 - before drug treatments were available - parents reflect on their experiences.
Families' Experiences of SMARD 1
Families' talk experiences of getting a diagnosis and caring for their child.
Bereavement and Memories of babies who had SMA Type 1
Families' experiences of grief, coping with bereavement, personal tributes and memories.
