Community Voices - Podcasts, Videos & Stories

Scroll down for a whole range of experiences and thoughts - our thanks to all our contributors. To add your experience - in writing, a video, a photo or a podcast -  find out more.

Out and About and Leisure Time

Out and About and Leisure Time

Sport, driving, travel to name just a few.

Adult Reflections

Adult Reflections

Living independently, working, travelling, looking back on life to date.

Teenage Reflections

Teenage Reflections

Work experience, school, hobbies and life in general.

Family Reflections

Family Reflections

Equipment, education and spinal surgery are some of the topics discussed.

Having SMA & Becoming a Parent

Having SMA & Becoming a Parent

The journeys that have led to this new chapter of life.

Animal Companions

Animal Companions

From assistance dogs to pampered pets and furry friends.

Speaking Up For SMA

Speaking Up For SMA

In the media, at an event or Parliament – what people have been doing.

Parents' experiences of Diagnosis and Care for their infants who had SMA Type 1

Parents' experiences of Diagnosis and Care for their infants who had SMA Type 1

Since 2011 - before drug treatments were available - parents reflect on their experiences.

Families' Experiences of SMARD 1

Families' Experiences of SMARD 1

Families' talk experiences of getting a diagnosis and caring for their child.

Bereavement and Memories of babies who had SMA Type 1

Bereavement and Memories of babies who had SMA Type 1

Families' experiences of grief, coping with bereavement, personal tributes and memories.