Weekend Ticket: £60 per room

This ticket will accommodate up to two Adults (in either a double or twin bed), plus if required, up to one Child and one additional Child Under 5 in a travel cot.  You will be allocated one room.

Your ticket includes:
Accommodation on Friday night
Breakfast and Buffet Lunch on Saturday
Saturday night Dinner with live entertainment
Accommodation on Saturday night
Breakfast and Buffet Lunch on Sunday
Access to all presentations, workshops and activities on both Saturday and Sunday, as well as swimming at the Sports Centre

Rooms are limited, therefore to ensure that as many of the SMA Community as possible can attend you may only book up to two Weekend Tickets (i.e. two rooms) for each family group

Day Tickets
Day tickets will be available for £10 for the Saturday and £5 for the Sunday.  These will be released in May and will include Buffet Lunch and access to all presentations, workshops and activities on that day.
Under 16’s are free but will require a ticket so please ensure you add these for all members of your group.

Friday 26th September 

Guests are welcome to arrive from 4:30pm to check in and register. There is a bar and restaurant in the hotel, but drinks and food will not be provided for by SMA UK.

Saturday 27th September 

Clinical Information Day 

Taking findings from our research into community priorities, we have worked with some of the UK’s leading specialist SMA clinicians to create an engaging clinical programme for the Saturday agenda.  

There will be spaces available to relax and chat freely, as well as to entertain your children at any point during the clinical information day.  

Morning agenda

We will be reflecting on the past, celebrating the present and discussing the future for people living with SMA.   

Expert specialist neurologists from both paediatric and adult services, will be discussing how treatments for SMA have transformed the way they work with their patients. They will be informing us about how data is collected, stored and used for research purposes and how people living with SMA today are impacting those of the future.  

Morning breakout sessions 

Adults 

Adults living with SMA will have the opportunity to hear about the latest treatment updates. Dr Channa Hewamadduma will talk about current and future clinical trials, including what the community see as unmet needs for people living with SMA today. 

Families 

Those of you with children living with SMA, will be joined by Dr Giovanni Baranello, specialist neurologist at GOSH and Dr Melissa Bowerman, a leading researcher in the field of SMA. They will be discussing treatment and therapies for SMA that are on the horizon and will be listening carefully to the needs of the paediatric SMA community.  

Afternoon agenda 

SMA Care UK 

The first three revised standards of care recommendations hip, spine and respiratory management in SMA will be presented by the leaders each expert team. These updates are based on the latest research evidence, clinical best practice and patient perspectives. Find out what optimal care should look like for everyone living with SMA in the UK across these key areas.  

Afternoon breakout sessions 

The afternoon sessions will centre on physiotherapy, focusing on what families and adults can be doing within daily routines to maintain mobility and strength.  

Sunday 28th September 

SMA Community Day
The day will include various activities including; Boccia, swimming, live podcasts, face painting, exhibitions stands and children’s entertainment.  

Big Weekend Q&A