After fleeing the war in Ukraine, Anna, who has SMA Type 2, was in desperate need of a powerchair here in the UK. Read her story and find out how our Support & Outreach Team was able to help.
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Disability Trolling: How To Deal With Negative Comments Online
Ross has written a recent blog about some of the negative comments he’s been receiving online, and gives his top tips for how to deal with this.
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Steven – My Experience with SMA
Steven shares his experiences, from growing up and school, to his career and living independently.
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Hayleigh’s story
As part of SMA Awareness Month 2022, Hayleigh shared her story about a particularly difficult time she and her family went through, and the importance of the specialist healthcare they experienced, over 20 years ago.
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Luis’ Story
Luis shared his thoughts for SMA Awareness Month in 2022.
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Life Updates from Ross
Ross shared some updates on his blog, including how he’s been pushing himself out of his comfort zone.
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Suzanne: New Beginnings
Receiving treatment, completing a PhD, and getting married – quite a hat trick in one year!
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Eden – Growing Up and Living With SMA
Eden is 20-years-old and has SMA Type 3 – her experiences, include going to school, learning to drive and going to university.
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Steven: The Only Limit Is The One You Set Yourself
In this video, Steven reflects on going to school, learning to drive, university, commuting to work and gives some top tips!
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Mia Looks Back At Her School Days
How school became an essential part of her life, making friends and the role that staff / TAs played.
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Gary Shares His Experiences
In this video, Gary, in his 60s, looks back at living with SMA from his childhood to the present day.
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Fleur – Everybody: Check Your Sats (Oxygen Saturation)
Fleur shares her story here and explains why she’s asking you to check your sats.
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Ross – Life’s Too Short…five top tips
Ross, a Cornish Lifestyle & Disability Blogger who has SMA Type 2, gives his five top tips to help improve a low mood.
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Julian’s Life Experiences
Julian talks in this video about living independently, family life, overcoming challenges, commuting to work, and learning to drive.
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Jasmine Fundraises for a Wheelchair
Some of her experiences and how she went about raising the funds for a new wheelchair.
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Suzanne Celebrates her 50th Birthday
Suzanne, who has SMA Type 2, talks about her life and how this year she was celebrating a very special birthday.
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Joan – Living Independently (2010 & 2016)
Joan decided to live independently when she was 42. Read her story from 2010 and see the video of how she’s getting on in 2016.
