The way SMA impacts many adults has changed since treatments started. This has meant that the way the condition is managed and the care needed has also changed. This is why expert clinicians and patient representatives are now agreeing on new guidelines for care for children, young people and adults.

There are many areas to think about – from managing the impact on breathing, spine & hips, exercise & activity to nutrition.

Guidelines will generally be about how to manage symptoms. Some guidelines will be related to other important information about the impact of a person’s SMA. Age may also matter for some.

You can read more about this important work and the progress so far at: SMA Care UK > 

In the meantime, talk to your clinical team if you have any questions or concerns about your health.

These cover a range of topics that may be of interest. They include ones on drug treatments, diet and exercise

Watch and listen now >

For many, access to mental health support is a high priority which is often overlooked. The next page outlines what may be available.

Read more >

Some people who have SMA have difficulty opening their mouths and with swallowing. This can make cleaning teeth and dental care challenging. Added to this, local dentists may not be wheelchair accessible. They may not be set up to treat anyone who needs careful positioning.

You may need to be seen by the NHS Special Care Dental Service. Ask your dietitian or other member of your clinical team or GP for advice.