Recently Diagnosed with SMA
Recently Diagnosed with SMA
If you or a family member has been recently diagnosed with SMA, this often comes as a shock and can be difficult for everyone involved.
At SMA UK, we work with leading clinicians from the UK and Europe using their expert knowledge to help us create informative guides and provide the most up to date information in various formats that will help navigate a recent diagnosis of SMA.
SMA UK’s Support & Outreach Team is here to support you and your family at this time so please do not hesitate to get in touch with them.
If you want to know more about the latest updates on treatments and research, please see here.
If your baby has been part of the Oxford/Thames Valley-based SMA newborn screening study and been diagnosed with SMA, please talk to your baby’s clinical team about the diagnosis and what this means for you and your child. You can also discuss with them which pages on our website may still be useful for you.