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Last checked: July 2026

These pages cover the topics many young adults tell us are the most important things they need to know and think about.

If you live in Scotland you may also want to visit the charity Contact’s website hub: Talking About Tomorrow – preparing for adult life in Scotland >.  

Over time you will transition from children’s to adult healthcare services. You will begin to take charge of managing your health needs and making decisions about your care and any treatment.

Read More >

All schools have to begin to support you to get ready for the education options open to you from the age of 16 – 18 years. They also need to provide independent career advice so that you can think and plan for what you want to do when you’re 16 and older.

If you live in England and already have an Education, Health and Care Plan (EHCP), planning for transition should start when your plan is reviewed in year 9 (age 13 – 14). It should continue every year after that.


What are my Options?

Once you’re over 16 and a “young person” you have the right to make your own decisions including deciding where you want to be educated.

You can leave school at the end of the school year when you turn 16. That’s usually the end of year 11. All young people have to then stay in some kind of education or training until they’re 18. This can be combined with paid or voluntary work. You could:

  • stay on at your school
  • transfer to another school
  • go to a further education college (mainstream or specialist)
  • do an apprenticeship
  • do a programme of training and work experience

See the tabs below for more information.


Will I get support?

If you live in Wales, Northern Ireland or Scotland please follow the links in Tab 1 School & Beyond. The links in there take you to organisations that explain the systems in these countries. They can advise you.

England

The support you have had doesn’t have to end if you choose one of these options. If you already have an Education and Health Care Plan (EHCP) > this can continue up to age 25 as long as you still have Special Education Needs (SEN) and stay in some kind of education or training.

If you don’t have an EHCP, our  page explains who may be eligible and how to apply:

Read more >  

Mainstream colleges must support students with SEN in a similar way to schools. There should be a named person at the college in charge of support for students with SEN.

You, or your parents, can ask the local authority to do an EHC needs assessment to decide if you need an EHC Plan if:

  • you have an SEN Plan or a Statement of SEN that has ended, or
  • you never had an SEN Plan

Useful Links & Organisations

Contact – Education beyond 16 > is written for families.

Enham Trust > – a range of services for disabled people age 16+ including advice and assessment for employment and training.

The King’s Trust > –  Phone 0800 842 842  – for aged 13-30 – free training courses, experiences, support, mentoring and finance.

Studential.com >  – an independent website set up by a former student while he was in the 6th form. Covers a range of topics and articles for students thinking about or doing GCSEs, further education, higher education, apprenticeships and post graduate courses.

UCAS > – gives a lot of information links and advice about the range of options open to you – it doesn’t just cover Universities

Youth Action Northern Ireland runs a GET SET for Work > programme – a regional youth employability programme for young people aged 16 – 24 years who are outside of training employment and education.

This includes any study after secondary education that’s not part of higher education (i.e. not taken as part of an undergraduate or graduate degree).

There are 3 types of technical and applied qualifications for 16 to 19-year-olds:

  • level 3 tech levels to specialise in a specific technical job
  • level 2 technical certificates to help get employment or progress to another tech level
  • applied general qualifications to continue general education at advanced level through applied learning.

Many courses in reading, writing and basic maths are free for all ages. For other courses you may not have to pay for tuition if:

  • you are under 24 and
  • studying for your first qualification equivalent to GCSE or A level.

Will I get support?

If you live in Wales, Northern Ireland or Scotland please follow the links in Tab 1 School & Beyond. The links in there take you to organisations that explain the systems in these countries. They can advise you.

England

The support you have had doesn’t have to end if you choose one of these options. If you already have an Education and Health Care Plan (EHCP) > this can continue up to age 25 as long as you still have Special Education Needs (SEN) and stay in some kind of education or training.

If you don’t have an EHCP, our  page explains who may be eligible and how to apply:

Read more >  

Individual further education providers should have student support services which can provide information about sources of funding for disabled students.

Useful Links & Organisations

Gov.UK Further Education Courses >

Natspec (The Association of National Specialist Colleges) > – has a directory and college finder.

16-19 bursary scheme > – you may be eligible for this financial help

Family Action > – Phone: 020 7254 6251 – have an educational grants programme > for age 14 years plus.

Disability Rights / Funding Further Education for Disabled Students >

These combine practical training in a job with study.

As an apprentice you should:

  • work alongside experienced staff
  • gain job-specific skills
  • earn at least the minimum wage
  • get holiday pay
  • get time for study related to your role . Generally this is one day a week.

Apprenticeships take 1 to 5 years to complete depending on their level.


Will I get support?

If you live in Wales, Northern Ireland or Scotland please follow the links in Tab 1 School & Beyond. The links in there take you to organisations that explain the systems in these countries. They can advise you.

England

If you live in England and already have an Education Health and Care Plan > your funding and support can take you up to age 25.

If you don’t have an EHCP and live in England, our  page explains who may be eligible and how to apply:

Read more >  


Useful Links & Organisations

England:

For more information, including vacancies:

Northern Ireland >

Scotland >

Wales >

You usually have to be 18 years or older to take a higher education course. This can be part-time or full-time. Courses are usually taught in universities, colleges or specialist institutions like art schools or agricultural colleges.

Anywhere providing higher education has a legal responsibility under the Equality Act 2010 to support disabled students. This is both when you are applying to higher education and when you are studying.

It’s up to each individual college and university to decide how it will support disabled students. This means you will need some extra time and effort with your decision making and planning. Open the next tab for tips on how to go about this.

Your school or sixth form college will be talking to and supporting all students who are interested in going to Uni or College. They should help you find out which ones offer the subjects and courses that interest you.

You will need to find out which ones can offer you the extra things you need as a disabled student.

Read more >

You may be eligible for this allowance. You don’t necessarily need to know where you’re going to study.

Read more >

Contact Social Services well in advance if you will need a care package to be able to attend University.

Read more >

Having SMA doesn’t mean you have to restrict your career options; disabled people work in every job sector.

Careers advisors will help you think about what you enjoy, what you are good at and what you might like to do in the future.

All the changes in both technology and social attitudes mean that there may be options you’ve never thought of, so talk to friends, family, teachers and search the internet for ideas. Your careers advisor can take you through the options including college, university and what qualifications and training you will need for any particular career.

You can also use the nationally available services listed in Tab 2 of  Adults/Study, Work, Volunteering>.

Recognising all the changes you’re having to manage during this time and getting support so that you maintain good mental health is just as important as looking after your physical health.

Read More >

Another big topic to think about  – your sexual identity, who you would like to meet, how you might do that and what sort of relationship you would like.

Read More >

Most young people feel more self-conscious at some time as they get older and go through puberty. They often don’t like other people seeing their bodies.

Having personal care from another person is probably a necessary part of your life due to your SMA, so this can be an even more challenging time for you.

Some young people continue to feel comfortable with parents and friends providing their personal care and, in time, their partners. Others prefer their care from Personal Assistants (PAs) and to keep things on a more ‘professional’ basis. However, practically it’s not always possible to find good reliable PAs.

Whoever is providing your care, it’s important you trust and feel comfortable with them. If you have any concerns at all about the way someone cares for you, make sure to tell and talk with someone you trust.

You can read more about Employing PAs in Tab 9 of Adults/Local Authority (LA)-Funded Social Care & PA Support >.

How long it will take, what will be involved and how complicated it will be for you to get to drive your own car will vary greatly from person to person. But don’t be put off. There are many different adaptations and gadgets available now.

Read More >

Meeting up and having good times with friends is probably a top priority. If you’re looking for new ideas and options….

Read More >

If you:

  • have questions we haven’t answered
  • need support

please get in touch >

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