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This submission was to NICE as to whether they should recommend that NHS England funds Risdiplam.

Thank you to those of you who completed the survey we ran about your views on this. They were crucial for the submission we made.

The first committee meeting was scheduled for 11th May 2021.

Below are the links to see the submission and accompanying documents:

Joint submission >

Appendix 1 – Survey summary tables of all respondents >

Appendix 2 – Survey summary tables of adult respondents >

Appendix 3 – Survey summary tables of parents of children under 18 years >

Appendix 4 – Comments from the survey >

Appendix 5 – Risdiplam summary >

Appendix 6 – Risdiplam trial summary >

Appendix 7 – Survey respondents in England who are receiving nusinersen >