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Page last checked: 19th December 2022
Last updated: 15th February 2022


This information is from the Risdiplam MAA on NICE’s website here.

This group has representatives from:

  • NICE
  • NHSE&I
  • Roche
  • SMA UK
  • TreatSMA
  • Muscular Dystrophy UK

The group exists to oversee the operation of all aspects of the Data Collection Arrangement (DCA) and associated activity to ensure that the objectives of the agreement are met and that the data collection and analysis requested by the NICE committee is delivered on time for the guidance update at the end of the managed access period.

The MAOG will regularly review progress with the implementation of the DCA and may recommend actions to address any issues that may arise, from time to time.