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FlexiGrant 1 FAQ’s

FlexiGrant 1 FAQ’s

Last updated: 17th August 2026

 

1. Who is the grant for?

FG 1 supports families with children and adults who have SMA.

2. Can I apply for FG 1 and other SMA UK Grants at the same time?

You can also apply each year for:

3. Are the Grants means tested?

We do not means test our grants, but we do ask that you meet the criteria set out in our FG information.

4. Can someone else apply on my behalf?

Yes, a parent or family member or health or social care professional may complete the application on your behalf. However, we will need to be assured that you are aware of the application and have given your consent.

5. Can I be reimbursed for appointment already attended or those that I’m due to attend? 

Yes, with your tickets or receipts and evidence of appointments, we can offer grants before or following your treatment/assessment(s)  

 

6. I haven’t been in contact with SMA UK before. Can I still apply?

Yes you can. Please be aware that if you are not known to us we will check appointments and information on your application with your medical team.

7. What documents do I need to provide with my application?

You will need:

  • a hospital diagnosis letter confirming SMA
  • appointment information
  • travel details
  • receipts

We will check the prices and costs you tell us about.

8. Can I choose and book my own accommodation near to the hospital?

Yes, if the NHS is unable to provide accommodation for you, you can book a hotel room near to the hospital that is equivalent to a nearby budget friendly hotel chain. We are unable to fund more expensive hotels. 

9. When will I hear if my application has been successful?

We will let you know we have received your application and will respond to your request as soon as we can.

10. Do you award a grant to all applications?

We have the right to reject any application and may not give a grant.

11. I have more questions, who can I contact?

You can call our office on 01789 267520 or email grants@smauk.org.uk if you have any questions or would like support to complete the form.