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Children & Families – Reflections & Experiences
Children & Families – Reflections & Experiences
Community Voices
Meet Hattie, Esmé and Lily!
During SMA Awareness Month 2022, the families of Hattie, Esmé and Lily shared quotes and photos of each of them:
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Ezra’s story
Ezra is six and has SMA Type 1, he is having Spinraza.
Ezra’s story>
Grandparent Russ
Russ shares his experiences of granddaughter Georgie’s diagnosis of SMA, and the journey the family have been on since.
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Kym and Rayne
Kym shares her experiences following receiving her son, Rayne’s, diagnosis of SMA Type 2.
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Chris and Alex
David reflects on the close relationship his sons Chris (who has SMA) and Alex (who doesn’t have SMA) had while they were growing up.
