Children & Families – Reflections & Experiences

Community Voices

Cheryl on being a mum to two young adults living with SMA

‘I am the very proud mum of two fantastic humans. Smart, funny, kind, determined. They both know what they want out of life and go for it while also making sure they have a lot of fun along the way. In February 2026 Cheryl reflected on their lives together.

Meet Hattie, Esmé and Lily!

During SMA Awareness Month 2022, the families of Hattie, Esmé and Lily shared quotes and photos of each of them:

Ezra’s story

Ezra is six and has SMA Type 1, he is having Spinraza.

Ezra’s story>

Grandparent Russ

Russ shares his experiences of granddaughter Georgie’s diagnosis of SMA, and the journey the family have been on since.

Related Podcasts & Videos

SMA Life Through the Ages (Sonny)

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