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What are we doing?

We are working with our partners and alliances to raise community concerns with providers and gatekeepers to services. There is wide agreement that access to appropriate levels of physiotherapy is a huge issue along with wheelchair provision and funding for housing adaptations

Many access challenges affect other disabled people. We join other bigger campaigning groups and alliances to voice needs seen in the SMA community.

We try to keep up to date with issues and policies that impact on the rights of disabled people, adding the voice of the SMA Community where possible.


Spinal Management in the UK

Access to treatment Science lab

RSV Vaccine

Katy at computer

Personal Assistant crisis