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Page checked: June 2026

Our Getting Ready for School pack contains tips and ideas from parents and carers and the SMA UK support team about

  • what to ask and look for when choosing a school
  • how to tell a school about your child and their health needs.

young girl in wheelchair with fun sunglasses at PIcnic 2023Download your copies using the links below or order a pack >

 

How will I tell school about my child and their needs? 

Most schools will have their own ways of finding out about your child.

If your child needs more additional help than the school can provide you will be guided and supported to outline their educational and any health care needs.

No two children are the same but these examples may be helpful. They are fictional but not unlike children we know:

Any family affected by SMA and living in the UK, can request a free copy of each of these books:

Our SMArt World. Written for children age 7 – 11, it is all about SMA and living with the condition. It includes a lot of the information on this page.

Smasheroo written for younger children. 

You can order these and other items through our shop >