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News & Updates

News & Updates

Celebrating Professor Francesco Muntoni: advancing progress for the SMA community

News
Treatments & Research
Image shows Professor Francesco Muntoni

Our Podcast is getting a fresh new look!

Uncategorized

ISE to start screening for SMA in England from October 2026!

Advocacy
Information
News
Wes Streeting, Jesy Nelson & Giles Lomax in TV studio

A Breakthrough for Babies: Scotland Rolls Out Newborn Screening for SMA as of today!

Advocacy
News
Treatments & Research
Uncategorized

SMA Care UK at the SMA Europe Congress 2026 in Budapest

SMA Care
Treatments & Research

Advocating for the appointment of a National Clinical Director (NCD) for Rare Diseases

Advocacy

Guest Blog – Cheryl on being a mum to two young adults living with SMA

Uncategorized

Rare Disease Day 2026

Advocacy
News

Update Following the MTA Committee Meeting on SMA Treatments

Advocacy
Treatments & Research

Newborn Screening : A proposal has now been submitted to the NIHR for review.

Advocacy
News