An Interview with Ollie Martindale from CBBC TV’s ‘Gifted’
News & Updates
News & Updates
Our CEO, Giles Lomax, recently attended the NHS ConfedExpo
Carer – The Reality Behind the Title
An Update from Our Community Support Team
More Than a Job: My Journey as a Personal Assistant to Someone with SMA
Carers Week 2026: Supporting My Family Through Life with SMA
Student Documentary Highlights the Importance of SMA Newborn Screening
We need you to write to your local MP
NICE recommends nusinersen and risdiplam for permanent NHS England funding
Ireland Expands Newborn Screening to Include SMA and SCID
