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Major concerns over the future of adult neuromuscular care in Northern Ireland

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Treatments & Research

Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places

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Disability Action Plan 2024

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Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

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Surveys

Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds

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Updated guidance on Risdiplam

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Treatments & Research

Roche Provides End of Year Community Update

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Treatments & Research
Image shows the Roche logo in white on a dark blue background.

Office Christmas Closure

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Republic of Ireland adds SMA to the newborn screening blood spot test!

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Treatments & Research

Take Part: Share your experiences of SMA with healthcare decision-makers

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Surveys