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New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

Advocacy
Information
News
Image shows baby's feet and an adult's hand

Roche Provides Community Update on Risdiplam Data, including Tablet Formulation

News
Treatments & Research
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Office Closure for the Easter Break

News

SMA Europe’s 4th International Scientific Congress

Uncategorized

Sarah and her Sparkling Wheelchair Upgrade with SMArt Moves Grants

News

Major concerns over the future of adult neuromuscular care in Northern Ireland

Information
Treatments & Research

Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places

Advocacy
News

Disability Action Plan 2024

Advocacy
Information
News

Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

Advocacy
Information
News
Surveys

Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds

Fundraising