New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board AdvocacyInformationNews Friday, 12 April 2024
Roche Provides Community Update on Risdiplam Data, including Tablet Formulation NewsTreatments & Research Thursday, 4 April 2024
Major concerns over the future of adult neuromuscular care in Northern Ireland InformationTreatments & Research Friday, 23 February 2024
Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places AdvocacyNews Monday, 19 February 2024
Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA? AdvocacyInformationNewsSurveys Wednesday, 24 January 2024
Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds Fundraising Wednesday, 17 January 2024