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First NICE committee meeting for continued access to Spinraza and Risdiplam

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Challenging the Flawed Baseline: Why SMA Treatment Must Offer Choice, Not Just “Supportive Care”.

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The Power of Real-World Data: Why Patients’ Experiences Prove the Case for SMA Drugs  

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Beyond Mobility: Why Holding the Line is a Major Win in SMA Treatment

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Landmark victory as Spinraza becomes routinely available on the NHS in Scotland

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Treatments & Research
Image shows a couple with a child in a whizzy bug holdig signs that say #ScreenTodayForSMA and SMA treatements: essential not exendable

The Scottish Government will be adding SMA to their newborn screening programme

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images shows a couple with a child holding a sign that says "We need newborn screening now!"

Newborn Screening Committee publish a breakdown of evidence for SMA screening.  

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SMA MTA External Assessment Report is now live

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SMA UK joined the Care and Support Alliance (CSA) at the ‘Show Us You Care’ event.

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Image shows a group of people holding signs that say "I Care!"

Government U-Turns on Key Disability Benefit Cuts After Backlash

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