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News & Updates
News & Updates
New Survey: Patient feedback around development of a Neuromuscular Complex Care Centre (NMCCC) in the North East
Information
News
Surveys
Not long left to submit your applications to join the Adult Advocacy Working Group…
Advocacy
Information
Planning for a UK-wide SMA newborn screening pilot to start later this year
Advocacy
News
Treatments & Research
SMA UK BBC Charity Appeal
Fundraising
News
Uncategorized
NICE preparing for the review of Nusinersen and Risdiplam
News
Treatments & Research
Spinal Muscular Atrophy: A Rare but Treatable Disease of the Nervous System
News
Treatments & Research
Adelphi Values Interview Study – Physical Ability: What is important to you?
Advocacy
News
Resonate 2023, what a weekend!
News
Uncategorized
Shop and raise free donations
Fundraising
Research into the views of the SMA Community towards newborn screening for SMA in the UK