This page has been translated automatically into English by Google Translate. Always consult with your healthcare team for any medical concerns. All PDFs and printed documents are only available in English.
News & Updates
News & Updates
APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions
Advocacy
Information
News
SMA UK Trustee Event – An evening with Sir Richard Dearlove OBE
Fundraising
News
Calling for Progress on Care Coordination in the UK
Advocacy
News
Novartis presents data on long-term treatment with Zolgensma
Information
News
Treatments & Research
Taldefgrobep Alfa Receives FDA Fast Track Designation for SMA
Information
Treatments & Research
ROCHE Community Update – SUNFISH Trial
Information
News
Treatments & Research
NHS England Provides Further Guidance around Definition of Non-Success of Zolgensma
Information
News
Treatments & Research
Results Published from STRONG Trial of Zolgensma
Information
News
Treatments & Research
Giles Lomax – CEO Announcement
News
Conversations with health professionals – new webinar!