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If you are considering the possibility of a drug treatment, this guide covers questions and topics that you may wish to consider in your discussions with your clinical team.

Though 5q SMA also includes Type 4, the treatments described in these pages are currently only funded by the NHS for Types 1, 2 and 3.

The section covering who may have access applies to adults living in England (which is why we have put this in the title of the guide), but this guidance is also followed in Wales and Northern Ireland. If you lives in Scotland, follow the individual links to each drug treatment under where it says ‘Related Information’ and you will find information about who may have access.

Read the information sheet >