Advocacy
Advocacy
Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing
![](https://smauk.org.uk/wp-content/uploads/2023/10/Portia-at-ICoNs-150x150.jpg)
SMA on the first list of conditions screened for in Genomics England‘s Generation Study
![](https://smauk.org.uk/wp-content/uploads/2023/10/SMA-on-the-first-list-of-conditions-screened-for-in-Genomics-England‘s-Generation-Study-150x150.png)
SMA Health Inequity Survey
![](https://smauk.org.uk/wp-content/uploads/2023/09/Shedding-a-light-on-health-inequalities-150x150.png)
Not long left to submit your applications to join the Adult Advocacy Working Group…
![](https://smauk.org.uk/wp-content/uploads/2023/08/Adult-Advocacy-Working-Group-150x150.jpg)
Planning for a UK-wide SMA newborn screening pilot to start later this year
![](https://smauk.org.uk/wp-content/uploads/2023/08/Newborn-screening-Announcement-2-150x150.jpg)
Adelphi Values Interview Study – Physical Ability: What is important to you?
![](https://smauk.org.uk/wp-content/uploads/2023/08/Adelphi-Values-survey-150x150.png)
Research into the views of the SMA Community towards newborn screening for SMA in the UK
![](https://smauk.org.uk/wp-content/uploads/2023/07/Newborn-feet-150x150.png)
APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions
![](https://smauk.org.uk/wp-content/uploads/2023/06/APPG0_med-e1687265612702-150x150.png)
Calling for Progress on Care Coordination in the UK
![](https://smauk.org.uk/wp-content/uploads/2023/06/Calling-for-progress-on-care-coordination-in-the-uk-150x150.jpg)