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Research into the views of the SMA Community towards newborn screening for SMA in the UK

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Biogen Provide Update on Phase 4 RESPOND trial of Spinraza

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Treatments & Research

5-Year Results from the Nurture Spinraza Trial Published

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Treatments & Research

Scholar Rock Provide Update on Phase 2 TOPAZ trial of Apitegromab

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Treatments & Research

We are excited to share with you our brand refresh and new website!

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Ian, Mark, Neil & Paul’s LEJOG Challenge

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Taking the leap for SMA UK

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Say hello to Gary!

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APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions

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