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Beyond Mobility: Why Holding the Line is a Major Win in SMA Treatment

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Landmark victory as Spinraza becomes routinely available on the NHS in Scotland

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Treatments & Research
Image shows a couple with a child in a whizzy bug holdig signs that say #ScreenTodayForSMA and SMA treatements: essential not exendable

The Scottish Government will be adding SMA to their newborn screening programme

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images shows a couple with a child holding a sign that says "We need newborn screening now!"

SMA MTA External Assessment Report is now live

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Government U-Turns on Key Disability Benefit Cuts After Backlash

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Hattie and James share their son Theo’s story about his SMA diagnosis   

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Treatments & Research

The National Institute for Health and Care research (NIHR) release ‘research call’

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SMA UK proudly launched their new children’s book, Spinal Muscular Atrophy: Our SMArt World.

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Bobby’s Adventure with the brand new X8

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Image shows teenager in a powerchair

Meet Bobby: Manchester United’s First Wheelchair-Using Mascot!

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