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When SMA hits the headlines: Holding space for parents and adults in our community

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Headline reads: When SMA hits the headlines: Holding space for parents and adults in our community. Written by Luis Canto E Castro. Image shows Luis.

Newborn screening for SMA: a short overview

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Reflecting on recent news shared by Jesy Nelson

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Treatments & Research

UK Drug Deal with the US and Changes to NHS Medicine Costs 

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Treatments & Research

Celebrating Mark Dearlove’s leadership and Welcoming Our New Chair of Trustees 

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Making Care Better: SMA UK’s Fight for Change

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Itvisma from Novartis, a new, safer way of administering gene therapy for older children and adults living with SMA  

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Update on NICE Decision for Continued Access to risdiplam (Evrysdi) and nusinersen (Spinraza). 

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Treatments & Research

First NICE committee meeting for continued access to Spinraza and Risdiplam

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The Power of Real-World Data: Why Patients’ Experiences Prove the Case for SMA Drugs  

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