Help shape the future of SMA hip care, exercise and physical activity

Advocacy

Information

News

SMA Care

Wednesday, 8 July 2026

SMA Care UK Annual Meeting brings together the UK’s SMA community to shape future standards of care

Advocacy

Information

News

SMA Care

Tuesday, 7 July 2026

More Than a Job: My Journey as a Personal Assistant to Someone with SMA

News

Thursday, 11 June 2026

Carers Week 2026: Supporting My Family Through Life with SMA

News

Wednesday, 10 June 2026

NICE recommends nusinersen and risdiplam for permanent NHS England funding  

Advocacy

News

Thursday, 14 May 2026

Celebrating Professor Francesco Muntoni: advancing progress for the SMA community

News

Treatments & Research

Thursday, 9 April 2026

ISE to start screening for SMA in England from October 2026!

Advocacy

Information

News

Wednesday, 1 April 2026

A Breakthrough for Babies: Scotland Rolls Out Newborn Screening for SMA as of today!

Advocacy

News

Treatments & Research

Uncategorized

Monday, 23 March 2026

Rare Disease Day 2026

Advocacy

News

Thursday, 26 February 2026

Newborn Screening : A proposal has now been submitted to the NIHR for review.

Advocacy

News

Wednesday, 21 January 2026