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Newborn Screening : A proposal has now been submitted to the NIHR for review.

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When SMA hits the headlines: Holding space for parents and adults in our community

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Headline reads: When SMA hits the headlines: Holding space for parents and adults in our community. Written by Luis Canto E Castro. Image shows Luis.

Newborn screening for SMA: a short overview

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Reflecting on recent news shared by Jesy Nelson

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Treatments & Research

UK Drug Deal with the US and Changes to NHS Medicine Costs 

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Treatments & Research

First NICE committee meeting for continued access to Spinraza and Risdiplam

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The Power of Real-World Data: Why Patients’ Experiences Prove the Case for SMA Drugs  

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Beyond Mobility: Why Holding the Line is a Major Win in SMA Treatment

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Landmark victory as Spinraza becomes routinely available on the NHS in Scotland

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Image shows a couple with a child in a whizzy bug holdig signs that say #ScreenTodayForSMA and SMA treatements: essential not exendable

The Scottish Government will be adding SMA to their newborn screening programme

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images shows a couple with a child holding a sign that says "We need newborn screening now!"