This website google translation is automatic. Our information refers to health and other services in the UK. Before changing any care or treatment, please talk to your doctor about what you have read here. We hope you find the translated pages useful.
News
News
New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board
Advocacy
Information
News
Roche Provides Community Update on Risdiplam Data, including Tablet Formulation
News
Treatments & Research
Office Closure for the Easter Break
News
Sarah and her Sparkling Wheelchair Upgrade with SMArt Moves Grants
News
Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places
Advocacy
News
Disability Action Plan 2024
Advocacy
Information
News
Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Advocacy
Information
News
Surveys
Updated guidance on Risdiplam
Information
News
Treatments & Research
Office Christmas Closure
Information
News
Republic of Ireland adds SMA to the newborn screening blood spot test!