Family Attitudes to Genome Editing for Prevention of Heritable Disorders

08 March 2019

The study aims to explore the opinions and knowledge of those in heritable disease communities regarding genome editing. The online survey will explore the different aspects of the technology itself, as well as its applications in a medical setting for the treatment and prevention of heritable diseases. The study will also explore the attitudes of those who have experience of heritable diseases towards the introduction of genome editing in embryos for correction of harmful mutations. 

It’s being led by University College London and is for people aged 18 or over who either have a genetic condition themselves or have someone in their family who has / had a genetic condition. 

Closing date: 30th May.

You can read more about the study here. At the bottom of the page you can sign up and then access the online survey directly.