Our New Advocacy Lead - Say Hello to Portia!

17 December 2021

Our New Advocacy Lead - Say Hello to Portia!

We're delighted to let you know that Portia Thorman will be joining our team as Advocacy Lead from 4th January 2022.

Portia has a BSc in Psychology and is a qualified primary teacher. She lives in Ramsgate in Kent and has four children. Her youngest child, Ezra, is five and has SMA Type 1. Since his diagnosis, Portia has shared her experiences on social media and has worked to increase awareness of SMA generally. Now that Ezra is at school full time, she saw this role as an amazing opportunity to take her advocacy to a formal platform with SMA UK, working on issues which affect large sections of the SMA Community. 

Welcome, Portia!