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SMArt Moves: Empowering the SMA Community through mobility.

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News

Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing

Advocacy
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Eating, Diet and Nutrition in SMA

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Treatments & Research

Disabled Children’s Partnership – New Campaign: “This is Social Care”

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SMA Health Inequity Survey

Advocacy
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New Survey: Patient feedback around development of a Neuromuscular Complex Care Centre (NMCCC) in the North East

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Surveys

Not long left to submit your applications to join the Adult Advocacy Working Group…

Advocacy
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Research into the views of the SMA Community towards newborn screening for SMA in the UK

Advocacy
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APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions

Advocacy
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Novartis presents data on long-term treatment with Zolgensma

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Treatments & Research