Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing AdvocacyInformation Thursday, 12 October 2023
Disabled Children’s Partnership – New Campaign: “This is Social Care” InformationNews Wednesday, 13 September 2023
New Survey: Patient feedback around development of a Neuromuscular Complex Care Centre (NMCCC) in the North East InformationNewsSurveys Tuesday, 29 August 2023
Not long left to submit your applications to join the Adult Advocacy Working Group… AdvocacyInformation Tuesday, 29 August 2023
Research into the views of the SMA Community towards newborn screening for SMA in the UK AdvocacyInformationNews Tuesday, 25 July 2023
APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions AdvocacyInformationNews Tuesday, 20 June 2023
Novartis presents data on long-term treatment with Zolgensma InformationNewsTreatments & Research Monday, 22 May 2023