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News & Updates
News & Updates
Sarah and her Sparkling Wheelchair Upgrade with SMArt Moves Grants
News
Major concerns over the future of adult neuromuscular care in Northern Ireland
Information
Treatments & Research
Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places
Advocacy
News
Disability Action Plan 2024
Advocacy
Information
News
Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Advocacy
Information
News
Surveys
Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds
Fundraising
Updated guidance on Risdiplam
Information
News
Treatments & Research
Roche Provides End of Year Community Update
Information
Treatments & Research
Office Christmas Closure
Information
News
Republic of Ireland adds SMA to the newborn screening blood spot test!