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Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds

Fundraising

Updated guidance on Risdiplam

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Treatments & Research

Roche Provides End of Year Community Update

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Treatments & Research
Image shows the Roche logo in white on a dark blue background.

Office Christmas Closure

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Republic of Ireland adds SMA to the newborn screening blood spot test!

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Treatments & Research

Take Part: Share your experiences of SMA with healthcare decision-makers

Advocacy
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Surveys

New survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

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Surveys

Progress update on UK NSC work to assess newborn screening for SMA

Advocacy
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Treatments & Research

SMArt Moves: Empowering the SMA Community through mobility.

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Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing

Advocacy
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