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Resonate 2023, what a weekend!

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Research into the views of the SMA Community towards newborn screening for SMA in the UK

Advocacy
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Biogen Provide Update on Phase 4 RESPOND trial of Spinraza

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Treatments & Research

5-Year Results from the Nurture Spinraza Trial Published

Treatments & Research
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Scholar Rock Provide Update on Phase 2 TOPAZ trial of Apitegromab

Treatments & Research
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We are excited to share with you our brand refresh and new website!

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Say hello to Gary!

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APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions

Advocacy
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SMA UK Trustee Event – An evening with Sir Richard Dearlove OBE

Fundraising
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Calling for Progress on Care Coordination in the UK

Advocacy
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